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Irish Raynaud's & Scleroderma Society

Organisation ID: CHY9845
The Irish Raynaud's & Scleroderma Society (IRSS) is a registered charity, founded in 1988, to increase information and promote understanding of these two debilitating conditions, and to raise funds to support research, administer relief, and improve communication between doctors and patients. The Society provides information to sufferers, carers, doctors, nurses and other health professionals, and purchases diagnostic and treatment equipment for hospitals. Aid is provided for members in the form of heating grants, home-care equipment and warm clothing. The Annual Awareness conference is open to all. A mail order service provides heating aids and other items which can also be bought online from the website at www.irishraynauds.com The Society is dedicated to its goal of improving diagnosis and treatment for sufferers throughout Ireland and is working towards Earlier Diagnosis, Better Treatment and a Cure. The first European Scleroderma Day was held on June 29 2009, which is the anniversary of the death of artist Paul Klee who died of scleroderma. Already it has become World Scleroderma Day now that the US, Canada and Australia have joined Europe to use this day to raise awareness. Contact: Tel/Fax 01 2020184 Email: info@irishraynauds.com
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